Please Note: CYFIP2 Network is not affiliated with the below sites. These links are provided solely for your convenience and do not signify endorsement or approval of these external sites. We have no control over the content or availability of these sites and accept no responsibility for them. Your use of any third-party websites is at your own risk and subject to the terms and conditions of those sites.
General Resources for families
Speech
Free Speech Therapy Ideas, Materials and Resources: https://www.speechandlanguagekids.com/
Speech and Language Development Chart: https://www.asha.org/public/speech/development/chart/
Speech therapy grants from Small Steps in Speech for children over 3 years old: https://www.smallstepsinspeech.org/
Speech Therapy and Communication Technology: https://theorangeeffect.org/
Reading
Free children's books mailed monthly until 5 years old, Available in the United States, Canada, United Kingdom, Australia, and the Republic of Ireland: https://imaginationlibrary.com/
5 Free Braille children's books per year from Seedlings, for children with vision loss: https://www.seedlings.org/free-programs/
Physical therapy
Registered DMI Practitioners (USA and International): https://dmitherapy.com/registered-dmi-practitioners/ (Tip: if you find a registered DMI Practitioner in your local area, see if they work with your local Early Intervention Program/Infant-Toddler Program!)
Cuevas Medek Exercises: https://cuevasmedek.com/
List of Pediatric Intensive Therapy Clinics Compiled by a physical therapist (USA and International):
Footsteps Centre (UK): https://www.footstepscentre.com/footsteps-foundation-charity/how-can-we-help/
Grants and other resources
Grant Sources for Special Needs Children listed by All of Me Therapy, LLC: https://allofmetherapy.com/wp-content/uploads/2019/02/Grant-sources-for-financial-assistance1-AOMT.pdf
Medical & adaptive equipment or therapy services not provided by insurance: https://wheeltowalk.com/
Grants for items that improve the quality of life for those living with rare medical conditions: https://chivecharities.org/recipient
Napa Center Grant List: https://napacenter.org/grant-options/
Early Intervention Contact Information by State: https://www.cdc.gov/ncbddd/actearly/parents/states.html
social media pages
Facebook Groups:
Hypotonia Parent Support Group
Autoimmune Neutropenia Support Group
children with feeding tubes gtube.gjtube.ngtube.mini button .support group
There are also countless Facebook groups dedicated to exchanging special needs equipment (buy, sell, swap, trade, etc). These groups can be listed by a specific area, country or may cover a large region. There are too many to list here so be sure to do a search for your area!
Instagram:
Adaptive Life Hacks - amazing Instagram page for affordable, practical and functional DIY life hacks for adaptive needs!
SUBMIT A HELPFUL RESOURCE
Do you know of any other resources that would be helpful to children and families of CYFIP2 DEE? Contact us at support@cyfip2network.org with the details!
International Families: many of the above resources are for families in the United States. We are always looking to list resources available for our families around the globe. Send us an email at support@cyfip2network.org!